Today was a rough day. It was not bad. Just hard. Sammy has
spent most of the day in pain, especially as he becomes more awake. His
condition is mostly unchanged. We tried to see about starting him on oral
feedings, but he is not responding to swallowing properly. We will try again
tomorrow with the feeding therapist. So for the time being he has a nasal
feeding tube. We are hoping that him getting some nutrition will help him get
stronger and make some more strides in his recovery. They are concerned about
seizures still so they have upped the seizure medication and are keeping him
hooked with an EGG for the night to monitor him. They are not really sure why
he is having seizures, but definitely not uncommon. Just not a normal for where
the surgery for him occurred. We are waiting to hear from oncology about the
pathology results to determine his actual diagnosis. They might come back
tomorrow, but by end of week if not. So just lots of waiting for now. Lots of
praying and supporting our little guy any way we can. We are reading to him
lots, as that is one of the only things we can really do with him right now.
Hoping tomorrow is a better day for us all and that he makes some more strides
forward.
Pray for his healing, that is is made whole again. Pray for his
pain, that he can tolerate it with ease. Pray that he can urinate on his own,
as he has had difficulty since the catheter was removed. Pray that the seizures
are regulated and that they are not impacting his functioning. Pray he
continued to gain back functions, that me is able to make more movements of
purpose. Pray that we get to see our Sammy again, and not just a shell of who
he was. We want to see him shine again and shine bright. Pray he is surrounded
by comfort. Pray for us as we navigate this road unknown and that we can
continue to keep a calm and peace around us.
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