Tennyson, who is better known as Tens or Tensy, faces a life time of challenges. But despite all of his challenges he is a fighter and out to prove everyone wrong.
Tensy was born with a form of primordial dwarfism, which is a rare conditions that result in a small body size and other growth abnormalities. Signs of the condition first appear in the fetal stage and continue throughout the lifetime of the individual.
He also has 1p36 deletion syndrome, that is a congenital genetic disorder characterized by moderate to severe intellectual disability, delayed growth, hypotonia, seizures, limited speech ability, malformations, hearing and vision impairment, and distinct facial features.
Tensy was also born with spina bifida, which is a type of birth defect of the brain, spine, or spinal cord. This is a defect in which there is incomplete closing of the spine and membranes around the spinal cord during early development in pregnancy.
Tensy also has a rare progressive lung disorder, non reactive hypoglycemia and a severe seizure disorder.
Yesterday, Tensy celebrated a milestone that doctors believed he would never reach! Tensy turned 5 years old! Tensy may now be 5 years old, but his size and comprehension is similar to that of a 2 year old. He is one super special child, who does not let his complex medical diagnoses slow him down!
If you would like to follow Tensy's story, you can follow along on Instagram.com/hipsterbaby_pdx
Thank you to Tennyson's mom for sharing his story with me and allowing me to share about him and the challenges he faces.
Don't Let the Pigeon Drive the Bus! by Mo Willems
¡No Dejes Que la Paloma Conduzca el Autobus! by Mo Willems
All of Mo Williams Pigeon books are especially loved in Tensy's home. Specifically, “Don’t Let the Pigeon Drive the Bus." Tensy is nonverbal, so it’s hard to know what he loves. But believes he loves the somewhat repetitive nature and he grasps that these are unusual behaviors for a pigeon. The truth is this book is fun for preschool aged children. It does offer a great repetition to the story. it also works through emotions with the pigeons different reactions to being told know. There is always some silly part to these books, that keeps children giggling along to pigeons adventures.
"Hi! I am the bus driver. Listen I've go to leave for a little while, so can you watch things for me until I get back? Thanks! Oh, and remember : Don't let the pigeon drive the bus!"
YouTube reading of Don't Let the Pigeon Drive the Bus!
Ages : 0-6
Grades : P-1
This book can be purchased for donation from our Wish List: 366 Days of Books Wish List
Please ship all books to :
Forever Got Your Six : Sammy
1300 S Watson Rd A114 PMB338
Buckeye, AZ 85326
If you would like to donate toward the purchase of books for donations please send to : Paypal.me/pumafamily and notate "Book Drive"
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